Your story of your daughter is beautiful. I am sorry for your lost. Thank you for sharing.
Katia Lowe said:April 1, 2011 2:49 pm PST
I went to Park City after my 1st grade year at Red Cross. In the middle of my 4ht grade year i moved back to Red Cross. The first day i ask were Maddie Morgan was. My teacher said shes gone. I ask were she moved to. Then after i thought about it i knew what she had meant.The day they was talkin bout Butterflies fo Maddie. I knew exactly what they meant.One of my cousins said she died of PVOD. I MISS YOU ALOT MADDIE MORGAN!!
Wendy Stanbery said:March 25, 2011 6:42 pm PST
HI. I am a mother of 2 boys, ages 6 and 8. We recently visited Cave City, KY during our boys spring break. One of the nights we were there we choose to eat at Pizza Hut, and this is where we were kissed by the butterflies of Maddie. Both of our boys were inquiring about the paper butterflies hanging around the resturant and asking about the precious angel staring out at us from the pictures. I read to them the information posted on the donation jug. They immediately wanted to purchase a butterfly. Their next question was "Mom is Maddie 'ok'." Being visitors to the area and not knowing Maddie's story, my response to them was "we can hope and pray that she is." We purchased a butterfly which they both signed as well as a t-shirt. The very upbeat and friendly lady who sold the t-shirt to us asked where we were from and if we had ever heard of PVOD. She also encouraged us to visit Maddie's site. Although I am in the medical profession, I was not familar with this horrible illness, and now that I have read Maddie's story I can't fathom the pain and grief you and your family have endured. I don't know if these words will comfort you in any way but Heaven has a beautiful angel who is spreading butterfly kisses to complete strangers. I admire your quest to inform and educate others of this fatal condition. What strength you all have. Thank you for sharing your story and thank you Maddie for 'fluttering' into our lives. I will share your link with all that I know hoping to help in some small way to expand your valiant effort to find answers. Wendy, Shane, Garrett & Jake Stanbery
Ali Alanis Huff said:March 18, 2011 8:01 pm PST
I love her , she was my little cousin, she was very beatiful, sweet, she was my best friend!
Brianne said:March 14, 2011 4:17 pm PST
I was at pizz hut here in cave city at the drive up window when i seen this swwet little girl picture and was really interested in doing this walk for this little girl. I lost my son 6/5/10 to water on the brain and it has not been a year yet but still going through the day to day process and im not trying to take the focus off this sweet little girl by any means i just am going through this too and i know that it is a very hard thing to deal with but i know that our children are in heaven walking with Jesus now. Hope to hear from you and I will see you at the YMCA on Apr. 16th.