I have a little boy who will be in the first grade when school starts back in August. He has had problems since he was born with what they call bad colds or allergies. I am curious about this pulmonary disease.He has a Lymph node that stays swelled. You can seee it plain as day . They say everything is OK. I can't help but worry. I think you guys are doing a great thing. Keep on doing what you are doing . My children and I have purchased allot of the butterfly things. Could you please E-mail e some info on the disease. Thank You.
katherine morgan said:May 30, 2010 11:27 pm PST
maddie my baby, granma misses you so much. i visted you and papa yesterday.it is heart brecking to do so. but we will always do it. you are so beautiful. we love you soooooo much. rest now baby. nite--
Cassandra Walton said:May 19, 2010 11:41 am PST
We just lost our 17 year old son to PVOD, one week ago today. PLEASE Mr. and Mrs. Morgan email us so we can call you. We are in Terre Haute Indiana. firstname.lastname@example.org
Ande Nimmo said:May 18, 2010 4:38 pm PST
I am so sorry for your loss, We just lost our Nephew to this horrible thing May 12th. He was only 17 and did not know he had it. His name was Kris Kercheval and lived in Terra Haute Indiana. It has been very hard and we know what you are going through and our hope for a cure. God Bless!
Litraca said:May 9, 2010 11:12 am PST
Hello My Beautiful Little Girl. I love you and miss you so much. I was just sitting here thinking of you, as I often do. The race was great this year. More and more people are learning about your story and PVOD. Now when someone sees my necklace and ask who the beautiful little girl is I can say "Maddie, you know from Butterflies for Maddie?" and they usually already know about the foundation. This is a very good thing. Well, I miss you baby and think about you often. You are always in my heart. I love you. -Atraca